Madi had a follow-up appointment with her cardiologist today. Here is a quick review to catch everyone up on Madi and the status of her heart:
Madi had open heart surgery on May 21st to repair a complete AV Canal defect. The surgery was much more complicated than they thought but they were able to repair her defect. Lots of prayers, some miracle working by Dr Woods, and a tough fighter for a daughter got us through! A few days after surgery the valves began to slightly leak (no big deal...this is common). They were only SLIGHTLY leaking so we were told they would just monitor the situation and there was a good chance that she would never need surgery again as long as there was not an increase in the leaking. She has had quite a few echo's done in the past 3 months and all looks great...until today! Today we received some good news and some bad (well, we'll just say not so good) news. The valve on the left side (the most concerning side) is now actually leaking less. This is great news because the left side of the heart is the side that pumps blood to the body. We obviously want that fully functioning! :) Looking at her echo today, the leak on the right side has gotten a little worse and her heart is actually enlarged now...something that we have not seen. There is a slight VSD on the right side that has started to leak more. It could CLOSE ON IT'S OWN (I am putting that in caps because I truly believe in positive thinking) but if it doesn't they will need to go back in and repair it. The surgery would be less involved than the first time as they would only need to go into the right side but it would still be open heart surgery with the bypass machine, ventilator, and chest tubes...the works. Her Dr did say that if she does need to have surgery, they probably wouldn't do it for at least another 6 months.
So here we are again. I am not freaking out yet. Actually I think it is odd that I am staying somewhat calm about this. Maybe it's because we knew there was a chance this would happen. Maybe it's because we've been through it (and although it was the worst day of my life) we know what to expect. Maybe it's because we truly are helpless in this situation and can't do anything to influence the outcome either way. Maybe it's because I have seen what my little girl is capable of and I know she will make it through with a smile on her face. Who knows! The fact of the matter is I am on my hands and knees praying that it will CLOSE. I am hopeful that it will and until I hear differently, I am hanging on to that glimmer of hope. So, I am asking to once again start the prayer chains for Miss Madi. I truly appreciate the support and prayers that are sent our way. They have helped us get to this place today and they will help us get through to tomorrow. So we have a follow-up scheduled for 2 months and they will do another echo to see how the leak looks. The appointment is actually scheduled for October 29th...Madi's 1st birthday. Maybe that will bring us some luck! :)