Wednesday, June 3, 2009
We were released from the hospital Sunday morning and are loving being home. We have been spending most of our days relaxing outside on the deck. Madi loves being outside and really had a hard time being cooped up in a tiny hospital room for 10 days! Those of you in the area know how nice the weather has been for the past few weeks...and it is nice to finally get to enjoy it. Madi is doing great. She was on a little oxygen when we first came home which proved to be a little challenging logistically. We have a HUGE oxygen tank set up downstairs and we also have a few travel tanks in a little backpack. When she was hooked up to the big tank downstairs you would hav to unhook her and use a little travel tank just to take her upstairs. She went to the cardiologist yesterday and we were able to take her off of the oxygen now...yeah! No more toting around an oxygen tank everywhere we go. They did another chest xray and echo of her heart and it all looks good. Her chest xray is actually starting to look better. She has been on prednisone since Saturday as she had some fluid build up around her heart. They put her on prednisone to get rid of that inflamation and it also seemed to have helped her lungs out...woohoo! The fluid around her heart is gone as well...so things are looking good for Miss Madi! She is in a much better mood at home and giving her medicine is not an issue at all! :) She still has a little bit of a temper that she never had before...it could be from the prednisone which they warned us may make her more irritable or it could be that she actually has more energy to get mad and cry! Her cardiologist said a crying baby is a good sign of a helathy heart and lungs. She still is pretty happy...we are down to about 1 minor meltdown a day...not bad for 2 weeks after open heart surgery. Grandpa and Nonna are still in town from Sacramento but are leaving on Saturday. :( They have been a huge help and Madi has had fun with them. She thinks Nonna is pretty funny and constantly giggles at her. She loves to play with Grandps and pull on his hair and face. We will be sad to see them go but Madi and Mommy are planning on going to Sac for July 4th so we will see them soon! I will get some more pics posted soon of our pretty girl with NO wires or tubes...I just wanted to post a quick update while I have a sleeping baby!