I can't believe it has been a month since I last updated the site! Things have been a little crazy around here. I also can't believe that Miss Madi is already 4 months old...time flies! Madi has recently had quite a few Dr appointments and all have gone well. She currently weighs 11lbs 13oz and is 24 inches long. She is still 50% for weight on the down syndrome growth chart and 85% for height. She is growing well so the addition of extra calories to my breastmilk is doing the trick. Madi also had an appointment with her cardiologist and all still looks well. It looks like she is going to have surgery the last week in May (don't have the exact date yet). It is great that she will be 7 months old (the goal was for her to be at least 6 months old). I have to admit that narrowing down a timeframe has made it a little more real. We will have a pre-op appointment in May where we will meet the entire surgical team, tour the ICU and surgical floor, and have a chance to ask any questions we have. It is all so overwhelming that I still sometimes feel like I don't even know what to ask or where to start! We also recently met with our Family Resources Coordinator who will assist us in finding all the resources that are available to Madi based on her diagnosis of down syndrome. Today we toured the Childrens Therapy Center in Tacoma to see if that may be a place we would like to have Madi's therapy (physical therapy, occupational therapy, speech therapy, etc). She will also be starting early intervention at A Step Ahead. We are not sure when therapy will start (most likely in the next few months). We do have a few exercises that we do with Madi each day but right now she is just enjoying life as a typical happy baby...soaking in the world around her.
Developmentally Madi is doing great. She is "talking" a ton, smiling, rolling over, and mastering the use of her hands to grab toys, etc. She is like a little crab with pinchers that manages to grab onto anything in her reach (especially my hair)! Miss Madi is also sleeping through the night...woohoo! She has been a good sleeper from the beginning but she is now sleeping 10-11 hours a night! She still goes to bed a little late (around 9pm) and sleeps until 7am (but the last few nights 8am). We moved her into the crib in her nursery about a month ago and she has been sleeping great ever since. Here are some pics from February...enjoy!