Today Madi was moved out of the ICU and onto the regular floor...yeah! This is one step closer to home! I am now able to stay with her overnight...I even have a chairbed (chair that pulls out to a bed) and our own bathroom with shower. We are set...it is like our own little apartment. :) Dave said he is going to bring in his sleeping bag and camp out on the floor...not the cleanest idea but I'm sure he's been through worse.
Madi is still doing well today. She is much less sedated but is in some pain today. She is squirming around quite a bit and can't get comfortable. She has been crying out today...which is good to get her lungs moving but hard for us to watch. She is definitely not her normal happy self. Even when she is awake she is not the happiest camper so we have been trying to get her to sleep as much as possible. She did have a bit of a fever this morning but is responding well to tylenol. Her cardiologist will be doing a follow up echo (ultrasound of her heart) to look at the repair and make sure everything looks good. They did hear a slight murmur today so please pray that it is nothing major!!!! We will continue to keep you updated. Thank you again for all of the prayers...and please keep them coming! :)
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Thanks for the update, sounds like she is being such a little trooper! I bet it's nice that you guys are able to stay at her bedside overnight now! Make sure you get your rest as well!
ReplyDeleteYou're all in our prayers, along with Madi's healthcare team, that they make all the right decisions. She's such a champ, and you and Dave are so loving and supportive. Madi is so blessed to have you both as her mommy and daddy. Thanks for updating.
ReplyDelete-Brenda, Jonny and K